Thursday, May 31, 2012

Post Endo appointment

So, updates. I met with a really lovely and kind endocrinologist who will be my 'cancer watcher' for the next 10 years. I have to have an ultrasound of my neck to take a look at the lymph nodes and see if any warrant concern before we have surgery. I'm going to meet with the surgeon I chose who comes very highly recommended as a skilled, fun person (yay!). I'm working to schedule my surgery for after the births I have coming up, so mid July.

After surgery I'll be probably pretty low key for a month and then I'll have radiation. I have to be at least arm's length away from other people for 72 hours - I'm thinking nice hotel room with room service - and then I have a full body scan to make sure the cancer isn't setting up shop in my bones, lungs or brain (bad news). After that's all clear, I'm considered 'in remission' and after 10 years of remission, I'm cured. :)

Thanks today to my friends who hung out with Eidie and got her dropped off with a saucy attitude and totally happy. :)

I'm not sure I'll be going to Uganda. I'm not ready to really think about it, but at some point I need to just consider that rebounding might not be instant like I'm imagining it will be, and I could still be pretty whacked out from thyroid replacement balancing at that time. So we'll have to see.

About my provider- he was so kind without being sappy, he didn't do that irritating 'I'm the doctor so I know what you're going to say and will answer before you finish asking your question' or, 'I'm too busy for this.' He just listened, looked me right in the eye, laughed at our terrible jokes, didn't talk down to me or over my head, referred us to additional resources, was very supportive, knew about modern treatments- I'll keep him. :)

I'll have to go to Seattle for the ultrasound, to meet with the surgeon, and for the surgery itself. 

All in all, a good day. I don't love that I have to really think hard about my commitments this summer and the idea of letting go of the Uganda trip is just not something I'm ready to put a lot of thought into until after we talk with the surgeon and can establish the timelines a little better.

For now, I'm looking to do nothing until after my two mamas have their babies, and then we'll just rock the treatment schedule around my trip to the Redwoods (which I am taking, whether I have a hole in my neck or glow in the dark or WHATEVER - I'm going), and then shooting to be able to go to Uganda. We'll see.


  1. Big day! When will your ultrasound be?

  2. Sounds good. I'm glad you're comfortable with the doctor. You've got this, girl.

  3. I have to call today to schedule the ultrasound so I don't know yet but will share when I do. :)

  4. I despise the waiting. Good job, you're doing great. I'm glad you like the doc. This is not meant to minimize at all but I just keep thinking of this like if I had a tick in me and I couldn't get it out - this is a big fear of mine, ticks. I just can't imagine having something in me and having to wait to schedule to get it out. Thanks for the update. I'm glad you are blogging because I've missed a lot and I want to know where you're at... catching up on your status lady.